Can’t Touch That

I write this from the floor. My knees are scrunched up in front of me and my caps serve as wrist stands. I’d write at my desk–it’s literally called a writing desk–but I can’t sit there long before my neck goes out which causes a headache which causes a sad face. Like this :( That’s exactly how I look when I’m feeling bad, if you were wondering.

Today I woke up feeling rough. Rougher than usual. Still, this is nothing new, and I’ve learned how to let go of plans and make myself useful in other ways from bed. But I was impatient today. I had things on the to-do list that I wanted to tackle and I couldn’t. I confront this a lot, but today it made me mad.

I’ve been trying to make some changes in my life: health-wise and beyond. I’ve been proactive about eating better and since some recent lab work detected gluten anti-bodies in my gut, I’ve cut that out. I don’t miss it that much, in fact it’s high time to go without it. Gluten free is so trendy right now! It’s just that I’ve never liked when people are picky at restaurants. And now I’m that girl, ordering the burger without the bun and asking the ingredients of sauces. Oh well.

Besides the diet, which I’m still configuring, I’ve begun organizing closets and getting rid of excess anything and attempting to follow some type of schedule. It feels good to do these thing, but they prove to be difficult and today is the perfect example of why.

Yesterday I cleaned out this closet in the living room, which has somehow collected my nieces baby clothes, my ex-boyfriends computer, a guitar with a missing a string, and THREE brooms, among other miscellaneous clutter. Throwing junk away can be a holy experience. After that I went to the bookstore to check out a few recommendations from a friend. I found them and walked around a while– I just like the atmosphere there. Then I went to the grocery store for a few things that turned out to be a lot of things. My legs were burning by the time I got home and I knew I’d probably overdone it. (Wuss) But I was in my Martha Stewart zone, or something. When I began to put away groceries I noticed that the fridge could use some cleaning. I took everything out, pitched half of it, washed the drawers in the hot soapy water, wiped everything down well, then stocked it. Admittedly I sat there and opened and closed the door a few times just to relive the magic of my newly pristine fridge. I was done around 10:30.

The truth is I didn’t do that much. And that’s the ticket! You don’t have to do that much in order to feel this bad the next morning. It feels like you ran a marathon on a whim and at the end a bunch of people gathered around and started kicking you. Dicks. When I sat down I realized my whole body hurt and my mild migraine I had all day has turned into a full-blown one. I took some of my 25 pills, then my nighttime pills, read a little and went to sleep. I slept pretty rough, but nothing too out of the ordinary.

When I awoke the next morning to the pool guy knocking on the glass door I felt the way Gary Busey looks.

Good Morning!

Good Morning!

I could barely get my eyes to open fully by the time I got to the door. I’m sure I looked like a zombie in pink pajamas. Anyway, all the “overdid it” symptoms were back. Achy, dizzy, heavy and the worst of them all: weakness. Because there’s nothing to do for that except wait it out. And that’s especially hard to do when looking at the list I’d optimistically made yesterday of all these tasks that needed crossing off. I really wanted to clean out my clothing closet, and sort through medical bills. You know, fun stuff! They would have to wait.

The thing is, it’s OK. This is how the illness works and I overdid it, just as I’ve done hundreds of times before. I’ve learned plenty of ways to make the day count from the couch. I’ll rest and improve over the next few days and remember that compared to the past, this is truly small potatoes. I don’t write the details of my day to wine or ask for help, but to show what a huge disruption the illness is. It feels like I am always playing catch up with the rest of the world, and this is probably why. I just tried to plan two days and it went off track. There is such a huge variable to consider and it’s often anyones guess, so sticking to things is a guessing game. Beyond that, I write because I’m still trying to figure out how to do this. How to have a fulfilling life, one that I am proud of, without upsetting the sleeping sick dragon inside me. It feels like a continual conundrum, and maybe it always will be.

Life keeps changing and I constantly have to re-mold how to live it. I am in a new relationship which is great. But it’s a new challenge. Introducing him into my weird sick life has been difficult on both ends. The illness is confusing, my life lacks structure and the circumstances just aren’t normal. In the beginning, I loved the escape I felt meeting someone new who didn’t know me as a sick person. It’s like visiting a place you’ve never been and knowing you can be anyone because no one knows your past. I thought we could keep going without having to confront it seriously. That was stupid. But it felt good to me, good I hadn’t felt in a while, and I went with it. Obviously that approach dissolved and at some point we both had to face the music.

I don’t always consider that to outsiders, my life isn’t normal. I forget that most people aren’t sick. They don’t have to take a bunch of pills in order for their bodies to do what they’re supposed to. They can go to work, fall asleep at night, and wake up and do it again. Something I did once but now I am in awe of. I forget that being sick effects other people, not just me. I realized that being continuously ill and taking pills all the time can make other people uncomfortable. But the truth is it does, and that’s OK too.

I think the hard part for partners of sick people is that they feel helpless. They are constantly reminded that we’re sick, but there’s not a lot they can do, or say, that will make it better. And that can wear on a person, as much as it wears on us to be sick. In my case, the healing doesn’t come from words. Nothing they can say will fix it. It’s more a matter of being there– sometimes a hug, holding my hand, or just laying together and feeling the warmth of someone else’s humanness. That’s really where it is. It’s not easy, but it does provide a lesson in surrender for both of us. Sitting with the pain and accepting circumstance and just allowing the moment. I think the thing to remember is that even though illness interrupts our plans and SQUASHES OUR FUN SOMETIMES, it really can’t take away the ethereal, elusive thing that makes each of us specifically human. We are still who we are underneath, and illness can’t touch that. In fact I think if we try really hard, it can make us an even better version of ourselves.

Health, Happiness, and Ultra Clean Closets

A Thousand Reasons Not To

This summer I enrolled in a creative non-fiction class at Loyola in New Orleans. The class was a workshop style and the 12 of us made for quite the diverse group. We varied considerably in age, sex, race and background. Together we could have easily graced the cover of a brochure for a city’s Parks Department or a Volunteer program of some sort. But we all wanted the same thing– to write, and for two months that’s what we did. Our teacher was a classic local New Orleanian who was an active writer in the city and taught in the MFA program. He always wore short sleeved Hawaiin shirts and had a pleasantly laid back approach to teaching. After the first class nerves and politeness wore off, we submerged into a chemistry all our own.

Here's a few of us in an elevator selfie I made us take.

Here’s a few of us crammed in an elevator selfie I made us take. It was late. 

We spent the summer writing and reading and critiquing each others work. I knew there was a lot to learn in our short time together, but I loved more how enjoyable and interesting our sessions were. We all shared this passion, but it was more our willingness to show up every week, to put things out there we weren’t always comfortable with, and to give and receive critcism with honesty and humility. Because of our many differences, we had very engaged discussions, and it was so refreshing to hear the voices and opinions of people who were so different than me. It sounds cheesy, but having that diversity made such a difference. When I reflect on my college classes it strikes me how homogenous they were. I was mostly surrounded by people who looked the same as me and were after the same things. This was different. Better, I think. I remember after the first class feeling so grateful that I signed up and went for it. I noticed it advertised on a coffee shop wall. So often I feel an interest for an “extracurricular” like that and tell myself one day, but I never follow through. I was glad I did this time.

The truth is that “One Day” is always “Today” right? That’s probably a bumper sticker somewhere, I hope. But there really isn’t any other day than this one, which is why one day hardly ever comes. It’s already here!

At the end of our last day of class, someone asked our teacher if he had any final advice for us before we all parted ways. He thought for a moment and then gave a subdued, thoughtful response. “Everyone is always asking, ‘When can I call myself a writer?’ or ‘What makes someone a writer or not?’ It seems so obvious, but the simple truth is that a writer is anyone who actually just sits down and takes the time to write. Who works away at his desk and grinds it out, again and again and again. It really is about just making yourself write, day after day, which is very hard to do.”  I remember thinking how simple but powerful an answer that was. So many people in the community, including me, ask that question, and so few people actually commit to the time and vulnerability and work it takes to create meaningful and honest writing. I think sometimes the idea of things is more appealing than the reality, which is always far less romantic.

I’ve been reflecting on his answer more recently as I’ve committed myself to a writing project that constantly challenges me. It boggles my mind that each morning when I sit down at the computer, I feel the same fear that I felt yesterday. I feel an uncertainty that’s totally unnerving. It makes me see and think of a thousand other things to do, besides writing my inside out. I see dust and think that I should dust. I realize a cluttered desk is no place to write so I clean that out first. I see paper and think I’ll make a list of other things to do, then cross each one off, then sit down and get to work. I check my email just to make sure there aren’t other things I could or should be doing. God forbid I enter the world of Facebook or Twitter or the black hole of the webosphere, never to be seen again. It’s crazy how much time I spend doing other things, with a fantasy in mind that once they’re complete, then I can write. It’s all a facade. It’s another One Day. There’s no perfect place to write, no ideal time, and no shortage of other things to do instead. I thought that once I did this long enough, I’d just wake up and start typing until nighttime and then do it again the next day. That I would overcome the fear once and for all. Not so.

Every day I feel a resistance to do the thing I love and deeply believe in. It’s strange and challenging and completely frustrating. It sounds like such a psychological cliche, but apparently this is a common defense mechanism that most people confront. If you don’t actually try and put stuff out there, you don’t run the risk of failure. Or rejection. In effect it’s just safer not to try. So we become skilled at finding ways not to. But it’s also boring and cowardly to give into it so I try and fight it all the time. Sometimes the fear wins and I don’t try that day. I alphabetize my medicine cabinet instead.

The flip side is, when I go too long without writing I feel like that kink in a hose running on high pressure. I get irritable and uneasy, like I’m going to POP at any moment. I can almost feel my insides stirring and expanding and the answer is always to let them out through words. It reminds me of something Marc Nepo wrote: “Talent is energy waiting to be released through an honest involvement in life.” True dat. The time before I write and the act of sitting down to write can be unpleasant and is usually really hard. But the feeling after I’ve written tells me that it’s what I’m supposed to do. I always feel better once I’ve done it, and sometimes if I’ve done it well, other people feel better too.

Whenever I watch really successful people on TV or listen to them speak, it always occurs to me that they got to where they are because at some point in their lives, they decided to try. And they too faced risk. But that’s always how big things begin. I used to think successful people were that way because fate had it in store for them. I thought they were chosen, as though success picked its people like teams in PE class. Now I realize truly successful people are all very different, but are triumphant in their aspirations because they’re true to their gifts and trust themselves enough to put it out there. They risk failure, but they get a chance at changing things, or going big, or living out their dreams. And how many of us are living out our dreams?! Even if they failed, they’d at least have tried, and there is success and respect in that alone. Some of my best stories and biggest revelations came from me failing first. Did you know I auditioned at Julliard? No, because I failed. But it’s also how I learned I wanted to write instead of act. Plus it makes a for a funny story now.

Our writing teacher told the class he had written two novels but so far no publishers had signed on to them yet. I was really impressed hearing that. I think actually having sat down and written a complete novel, start to finish, is a huge accomplishment. It takes such dedication and time and work, and he had written two. Even if they never get published, having two completed novels under your belt is awesome. Especially because writing is such a lonely thing– no one is really encouraging you or congratulating you until the work is finished. And you always run the risk that at the end of your hard work, it won’t be well received. I guess that’s the vulnerable part we all face any time we embark on an endeavor. But I don’t always think it’s about the finished product anyway. It’s more that we’ve dedicated ourselves completely to something, worked hard at it and saw it through to its end.

It is common sense to take a method and try it. If it fails, admit it frankly and try another. But by all means, try something.
-FDR

Health, Happiness, and Try Try Try Again.

One Month and the Buzz

So, I took a month off. I’ve missed you.

Health-wise I’ve been up and down, but more ups I think. I’ve been out of the house doing things; normal people things, 29-year-old things. Living like a normal person doesn’t always fair well on my body and a few times I pushed it too far and paid the price, but somehow it felt worth it. My soul needed to get out in the world and roll around in the dirt. I felt like Monty when he sees a squirrel and I unhook the leash–caution to the wind, full force ahead. Maybe 50%. I’m often battling this fear that if I’m sick for too long I’ll go to sleep one night and when I wake up thirty years will have gone by and I’ll have barely moved. It’s not always easy but I know it’s important for my soul and my psyche to get out there and try a little. So I do. I did. And I experienced these moments where I felt so intensely alive I could feel it buzzing in my fingertips. And that’s the stuff of life people! The best kind of little reminders.

A while ago I was invited by a friend to attend a three-day meditation retreat in Magnolia, Mississippi. I’d never been on a retreat before and I felt apprehensive at first. For starters, I felt angst about whether my body would hold up through the weekend. Secondly, I had this cliché vision of long-haired hippies dancing naked around a fire, sharing their “truths” or something. But when I learned it was a silent retreat, I knew I had to do it. I don’t know if I’ve made this apparent, but I sort of hate meeting people. I cringe at smalltalk and I find strangers questions difficult and exhausting to answer. I know it’s just part of conventional social norms, but this question of “What do you do?” causes me an intense five-second panic attack, and introductions almost always go there. To give an honest answer comes with this pressure to provide a back-story, which is long and convoluted. I expect strangers have as much interest in hearing these details as I do telling them, and sometimes I feel like rolling my eyes at my own reality. But I haven’t yet figured out a way to give a succinct honest answer that leaves everybody comfortable. I think I’ll start answering ‘waitress’ and save everyone five whole minutes.

So this the idea that we wouldn’t have to talk to other people, including our assigned roommates, totally sold me. But I still felt angst about my health hovering in the background. This is nothing new. I confront this fear all the time making decisions because my health has failed me so many times before when I’ve really counted on it. So I don’t anymore. It’s hard always having to maneuver around this invisible thing in your life that you don’t even like. But this is my reality and hating or fearing it does me no good. So I considered the worse-case scenario; I crash. Even if that were the case and I spent the weekend in bed, what were they going to do? Strap me to a chair and force me to meditate? I figured I’d be OK. So I said yes. And there’s something pretty revitalizing about saying yes to something new, especially when for so long these kinds of opportunities were an automatic no.

I wrote an essay about the weekend and I’ll post that next. I’ll say now my favorite part was eating lunch next to my friend in total silence, only making eye contact every now and then. There’s a lot of space and freedom that opens up when no one feels the need to talk. They call it “noble silence” and I think we could all use a little more of it. It rocked!

After that I was invited on a weekend trip to the beach where I would share a house with 12 other girls. So basically the opposite of the silent retreat. I am a total beach bum and don’t feel I get enough of it, so I went. And it turned out to be a really awesome and fun weekend. I was feeling pretty sick the day we left, but I was also really craving the sand and the air and warm gulf water. (I’m a pansy about water temp) I knew I’d feel better once I got there, so Emily and I drove the three and half hours there and watched the sun set while crossing the Louisiana/Mississippi border. I felt really happy in that moment. The sunset was the kind that changed colors every 10 seconds and was remarkably beautiful over the Louisiana marsh. I tried to capture the spectacle made by all the intense colors, but a picture never does a great sunset justice. It’s like holding a rookie drawing next to a Monet. Maybe it’s better to just pause and enjoy the splendor of a disappearing sun. It’s such a short-lived pleasure anyway. Watching them always make me feel grateful.  We finally arrived and learned that our house was next door to the classiest bar in the South: Florabama. So naturally, we went. Never heard of it? Here’s a peek.

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No Pets

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Every time I visit this bar I am overwhelmed and baffled by it. It’s three stories (possibly more, I don’t know, I’ve gotten lost in it twice), hosts multiple bands on different levels, and is jam-packed with drunk people of every age. Every surface is a proverbial guest book where people under the influence leave their mark for the world to see. I’m always riveted and only sometimes horrified reading the graffiti that adorns literally every surface. I started photographing the funny ones so I could laugh later and have some weird photographic keepsake of the trip. So I took a photo of the surface of the bar we were ordering from.

Damn you, Laken

Damn you, Laken

We couldn’t stop laughing at the idea of some angry person pulling out a marker and deciding to write that Laken Franks sucks Donkey Penis. A while later I entered the Florabama bathroom, where I confronted many, so many more messages, in every color, on every surface, including the toilet seat. I took some more photos because so far no one I met was as interesting as this graffiti of the world. I liked the idea of one picture having the mark of so many strangers, many of whom likely have no memory of the literary gems they left. And now I’d have a piece of it and they’d have no idea about that, either. So what did I find while looking through those photos later? Another sentiment for Laken in the bathroom stall.

Damn you again Laken

Damn you again Laken

Only this time Laken’s a baby murdering whore. I couldn’t believe the name showed up in two photos. Pretty crazy odds given the volume of surface area in that place and the amount of angry messages. I wonder who Laken Franks is and what she (he?) did that left someone upset enough to get creative with their insults and tattoo them on two of the walls of the worlds classiest bar. I shall never know. I’m just glad I was alive enough to be there and capture it. My fingertips were buzzing at little moments like this all weekend. But mostly when I watched the sun rise on the beach at 6 am. There’s something almost holy about a sunrise. It feels like a sneak-peek at reality unfolding–a backstage pass to the universe or something. Anyway, I’ll leave you with that photo, because I was feeling very alive when I took it, and my fingertips still buzz when I look it now. Maybe yours will too.

6 am, alive and well

6 am, alive and well

Health, Happiness, Buzzing