Don’t Forget to Do Nothing.

Two things happen when I start feeling better: My house gets really, down-to-the-baseboards clean, and my writing takes a hiatus.

For whatever reason, the last two weeks have been comparatively healthy ones. My energy is up and my pain level medium and manageable. Like most people with the illness, I couldn’t tell you exactly what’s changed. And if the past is any indicator, I could just as easily land on my ass tomorrow and be in a bed for a week. Of course, I’m not expecting that, and I’m enjoying the hell out of the newfound energy. My mom says it’s obvious when you start feeling better because suddenly you see all these little things that need tending too that you hadn’t noticed before. I’m sure it’s a defense mechanism of the body. You can’t exactly worry about dusty baseboards when your arms are too weak for teeth-brushing.

As I’ve enjoyed this accelerated momentum and stamina, I noticed I was forgetting to write. It’s easy to see why–often the trigger for me to write is either some sort of pain (physical or mental) that leads to enlightenment or offers some lesson, or it’s diverted attention to some very small detail that I usually notice when the pace of my life is slow, ie when I’m sick. It’s not that the requirement for noticing these deeper observations is sickness, it’s that when I am in fact sick, everything slows down. Out of necessity, I don’t really have a choice. The tasks on a to-do list, the chores, the logistics of physical life are put on hold while whatever broken part of me is on the mend. When I’m in this state, it’s almost as if some parts of my brain are turned up while others turn down. Like the static and noise of everyday life are quieted, and in that absence come the more powerful details and ideas. In other words, I’m tuned in to a different frequency. I’m looking for and sometimes finding answers and meaning maybe because it’s a way to feel alive and happy while waiting on my physical body to “catch up”. But I’ve discovered something in the last two weeks that now I’ll be paying attention to:

I shouldn’t have to be sick in order to be tuned in to that frequency.

The modern world is fast. The to-do lists are bottomless. And even when we die there will be unread emails in our in-boxes. This is why that conscious awareness I have while I am sick, the kind that the mystics speak of,  will have to be a choice on my part. (If I am to be well) If the last three years have shown me anything, it’s been the importance of that tuned in consciousness. Of living my life awake, not numbed or on autopilot. These things are easy to forget. Hell, I’ve been healthy a week and half and seemed to have forgotten just as quickly. But it certainly makes me examine the thought that all sick people have– could this be the reason I was sick at all? It’s not a theory anymore, I know with absolute certainty that without illness me and my life would be very, very different. I was a type-A personality; A competitive gymnast to whom school and other things came easy. Would I have ever slowed down? Would I ever have found Wisdom in the Day Lillies or saved the all those baby frogs from the pool everyday while examining the largeness and smallness of life that surrounds me? Would I stop to photograph plants like this just because it struck me as beautiful and that was reason enough for pause?

The Pink!

The Pink!

Well, probably not. And it’s not to say that me noticing the beauty of flowers or the fragility of life is so important or better than what I’d be doing otherwise. But I have to trust in the specific experience I’m having. Things could have been different, but of course, we can’t re-write our pasts. I’ll never know who I would’ve been. On bad days (on unconscious moments)  I fantasize that I would have been better. That my life would be a glamorous one and there would be little suffering and I would be the president blah blah blah. But that kind of thinking is mostly ego of course, and all fantasy. Projecting that all my happiness lies somewhere over there, if only things were different is textbook ego. And all that contributes to is a lack of attention to the present. It takes away my power and ability to see and navigate where I am with what I have. If our power is in the present and it’s indeed all we have like Tolle and his peers suggest, then the “if only” thought doesn’t get us very far. It’s rare that we stop to consider that without illness or without our painful experience, we might have been someone worse. Someone very unlike who we are today. Now when I consider why maybe this illness is a part of my path, it makes a little more sense. It’s what I needed to become awake. And clearly I’m still trying to get there.

Of course maybe you’re a student of the chaos theory, in which case all of this is just randomness unraveling in a one-time deal called life on earth. Some people are sick and other people aren’t. Life is good or life is bad and then you die.  I’ve considered this hypothesis but it just doesn’t work for me. It doesn’t further my vision or deepen my understanding of life and its complexity. In fact it seems to cut off at the very best part–the why. That’s a question I wonder if I’ll ever stop asking. Most of this experience only begins to make sense when I get down to details like a scientist would, and so that’s where my understanding is. Or where it begins. I am still searching for more answers, for more mentors and schools of thought to point me toward them. But I find it hard to accept a conclusion that appears to stop at the tip of the iceberg in terms of depth and understanding of all the elements of life that we cannot see. Love. Suffering. Belief. Surrender. Grief. Grace. Of course maybe I’m wrong in which case we’re all going to die anyway and I’ll never see you again. So, ya know, whateva.

There was only one day in the last week where I felt bad enough to spend the afternoon horizontal. As I write that I’m containing my excitement at how “good” I’ve felt that only one day this week I was on supine. Anyway, that morning I’d caught the eye of a tree frog on my kitchen door. For whatever reason I watched him a while and then took a picture. On my downtime that afternoon I kept thinking of that frog and the surplus of details on his little tiny body. So I wrote- a poem- for the next two hours. I don’t know whether it was good or not and maybe that doesn’t matter. But I do know for whatever reason, it had me feeling good to write it. I noticed then too, I’ve got to slow down. Even when I feel good, let some tasks lie. Let some calls go unanswered. Sit in stillness and quiet and let the questions come. Even if for ten minutes, I always feel better. Lately I’ve caught myself stuck on the guide channel of my TV, incessantly searching for a show that I feel will entertain or gratify me. I play one show in the window but continue to seek the magic program, while ads about Lipitor blare at unconscionable volumes. Suddenly, I’ll hit the power button, and the subsequent silence feels so. incredibly. good. That was the program I was looking for; silence! Life is noisy, and fast, and always non-stop. Sometimes it’s OK to stop and do nothing. Notice what happens in the stillness. It’s as if a whole other world exists right beyond the busy.

Health, Happiness, and Something Beyond the Nothing.

details.

details.

 

The Plague.

I feel the need to begin here by expressing my deep gratitude for the response to my last post. As usual, my decision to publish a raw and somewhat sad update was not without hesitation on my part. My preference is always to write in a happy and funny and optimistic tone, even if the words I am writing are happier, funnier and more positive than I actually am. In some ways it’s therapeutic, and in others it’s a challenge in creativity and authenticity. As much as I’d like my writing to point towards the fun and the funny, life is not always that way, is it? Sometimes it’s overwhelming and can feel too heavy to bear. I resist putting words out there like that for maybe the same reason I never liked to cry in public or ask for help when I needed it. It means, gasp, I’m not perfect. And that’s what the ego fears a lot. 

Over these last few years, the pride that held tears back and forced a facade that was untrue began to crumble. This writing project entered the picture when those superficial layers were starting to shed, and consequently this blog has some really vulnerable things in it, which can leave me uneasy. At the same time, I can feel that my most honest posts are the ones that connect most with strangers. (Duh) And that doesn’t mean they have to be in the tone of “True Life: I’m Sick All the Time.” Humor can be just as much genuine and communal. It’s the one I prefer, it’s just not the one that always is.

Anyway, it’s a battle inwardly and materially, but I just really need to extend my thank you to everyone who received my words and reciprocated with such loving support and encouragement. How can we lose faith in humanity when across the world, people sit down at a desk to uplift and strengthen a stranger with words? It’s a two-way street yall! I’ve been reflecting on so many responses from people I will never know, and that alone is healing. On a form level, it makes me trust in the direction that the blog is taking–one I did not design. On the formless level, it had me feeling so much better despite being so sick. That transaction served such a greater purpose than “You should try eating more JuJu Beans!” And I attribute that to all of us. This doesn’t feel like a solitary project anymore. So thank you. That’s all I’m saying, THANK YA VERY MUCH.

Now, onto the plague. I’ve been puking my guts out. But that’s not the plague I’m talking about.

My siblings with their partners and children rented a beach house in the Florida Keys last week. It happened to be the same weekend as the wedding of a long-time good friend. For two months I went back and forth. Beach house or wedding weekend? (Assuming I could move) I could always go to the beach and fly home for Saturday night and make it to the wedding just in time for the festivities, right!? But with the way I’ve been feeling, my unsteady ability to sustain, my mom didn’t even have to tell me with her eyes this time. I knew I couldn’t do both. Or maybe I could, but the price would be big, and these days the price of choices like that are not just gargantuan but scarily long lasting. Crash days have turned into crash months, and the basic goal is, Don’t do things that could set you back so far. 

Back and forth I went, and it was tortuous. It always is; I do this all the time.  Both choices seemed correct and incorrect simultaneously. My indecisiveness is one of my largest sources of anxiety. I won’t get into the details of why one choice was better than another, there were many pros and cons to both. But often when it comes to my immediate family, they’re the default decision. I don’t get to see them a lot and they’re my lifesavers after all. They’re my blood bro! After my brother called me a few days before the trip, started describing the waves and the weather and a hammock outside, I booked the ticket and felt confident momentarily that now I didn’t have to suffer. The decision was made and now I could relax. I guess.

“Indecisive Girl” by Carli Ihde

…Until I saw my friend who’s wedding I would miss and then saw all my old friends who I rarely see that would be there. And all the shit they gave me, it was more torture. What have I done?! I blew it! At the same time the trip was booked- let it go. You get to hang with your family on the beach. That rocks. That’s true. I got to the beach. I held my nieces and laughed with family around the dinner table eating fish my brothers caught that day. And then on day 2, I awoke at 5 am and had that feeling in my gut that something wasn’t right. And then at 5:30 I started puking up all those “not rights” I was feeling.  I had caught the stomach bug that half of my family had experienced the week before. My sister was up with the baby conveniently and she held my hair and that was nice. An hour later with my face pressed against the cold tile in between cycles of puke bursts, I moaned and tossed: “Shoulda gone to the wedding. Shoulda gone to the wedding. BLLLLURGGGH”  (puke sound)

I’m still recovering from that evil stomach bug and it’s a bummer. But the bug isn’t the issue here and I know that. I’m the problem. Shit happens that you can’t foresee or plan for. Regret and hesitation are such hinderers of the present. And we all know that the present is where peace lies. Happy is in the here and now. A lot of my unhappiness, and perhaps unhappiness in general, is being here and wishing to be there. I could easily have gone to the wedding and convinced myself I was missing a beach trip of a lifetime. I could have tried to breakdance and broken my butt. (That almost happened once) So while I lie here sick on an air mattress, in the living room, on vacation, (once again) I’m trying simply to just be here. I’m looking for the lesson. I’m trying to focus and trust in the experience I’m having instead of the one I did not. Thoughts like that are like swimming up-current–they consume and exhaust me even more. It’s just another battle that’s no use fighting.

I don’t know how long I’ve been plagued with indecisiveness like this. Though I remember even in middle school spending far too long picking out deodorant at Target, never certain I would choose the right scent. It’s been a long time. As always the first step to breaking a habit is awareness–creating a space between the routine reaction and a healthier one. Maybe it starts with knowing myself more. Trusting myself more. But maybe it’s simpler than that. In stillness the answer points to this idea; be where you are. Wherever that is.

I be sick in Miami! And it’s fine! Whatever!

Here’s something Tolle says: If you resist what happens, you are at the mercy of what happens, and the world will determine your happiness and unhappiness. …To be in alignment with what is means to be in a relationship of inner nonresistance with what happens. It means not to label it mentally as good or bad, but to let it be.

Pretty good no? I’m marinading on that one. Ew, marinade. I’m still queazy.

Health, Happiness, Plagues.

Artwork: Indecisive Girl from Carli Ihde

I Wanna Get Better

This strange thing keeps happening. This clear salty liquid keeps filling up in my eyes and overflowing down my face. I’ll feel a little overwhelmed and then a sense of loss, like I’m mourning someone. The liquid is an endless spring. I imagine I’ll run out, but I don’t. I have to drink more just to supplement all that salt I’m losing! It’s pretty annoying. I’d like it to stop.

The truth is I become a fragile emotional feather when I’m sick without relief. Gradually, after day and night and day of unrelenting sickness, it just gets to you. It starts to feel like dying more than living. I know that’s a heavy statement, and I use the verb feel very specifically. I am very much alive. Although it does beg the question. At what point do we say someone is “dying?” When their suffering outweighs their relief? That’s another question another day. I am for whatever reason, very alive, although I feel very dead. But dead people don’t cry so I think I can rule that out.

The real reason it’s been so hard recently is that being sick is absolutely and utterly exhausting. It’s overwhelming. And you know what I fantasize about? Being one of the people in my life right now that gets to offer help and suggest improvements and do random kind things. I dream of just being an average person in the functioning world. If you are that person, in anyones life, treasure it. It’s truly a privilege to be able to give to others. I might not have understood that had I never gotten sick. I want to give instead of take take take all the time. I’m tired of relying on help from others and constantly showing gratitude or kissing ass because I’m often helpless, unreliable, or burdensome. I’m tired of being high maintenance. I’m tired of all the pills I take, that work about half the time. Sometimes my stomach turns at the thought of them. I’m tired of being a bad friend in terms of what I am able to offer. I’m tired of what I am made to consider my “social life.” I’m tired of calling in sick to doctor appointments. Of seeing one or two hours of sunlight on bad days. I’m tired of my nightmares and high anxiety dreams every night. You’d think such a weighed down life would find respite in the dreamworld, but nope!! I’m tired of being 29 and relying on my parents as much as I do. Tired of feeling like I have things to offer the world but am too sick and small to carry them out. I couldn’t even hold a part-time job right now. And I’d actually love to. I’m tired of the answer being that there is no answer–there is no cure. I’m tired of being tired. And I know that those I rely on get tired of it too. The effects of all this go beyond me.

I don’t believe in whining and complaining and lamenting about life. Going on that way doesn’t really move us forward. But at the same time, there is pain here, underneath the pain, and if I don’t let it out I fear it will grow and take over my already sick insides. So I have to release it. I thought maybe if I write about it, these episodes of fluid filling up my eyes and clouding my vision and streaming down my face will cease. In other words, I want to stop crying at dog food commercials.

I am someone who loves solitude, thrives off of it even. But lately it feels more like loneliness, which is the third cousin twice removed from solitude. It’s a bad feeling. The difference between the two is that one is chosen and the other feels like the forced, only option. It’s hard to swallow when you’re constantly canceling on plans. And what you’re doing instead of being with friends, is being sick and alone at home. That’s not a fun thing to go through all the time. It wears on you.

I also laugh and cry at myself because I still want to see new places and try new things, meet new people and kiss cute boys. It’s like my heart doesn’t know I’m sick. It never gives up on the idea of new adventures. And then I wonder who would want to date me that has read this blog? I sort of leave my bleeding heart in the words here, and it’s a lot. It probably looks heavy. It can be, like anyones life. I feel vulnerable sometimes knowing that people have read such personal things about me without actually knowing me at all, but it’s part of the project. I told myself I’d always be honest, including when it got ugly. And I feel like it’d be dishonorable to discontinue that just for the sake of vanity. Still though, I worry and wonder if I’m cutting myself off from potential personal relationships by laying it all out there for the world to chew up. I worry where my life will go and how in Gods name I will move forward from here when some days I can’t leave the bed. But our boy Tolle is right: all we have is the present moment. All anyone can do is here and now. And if the present moment has me weak and in bed, (like it does right now) I can’t judge it or myself. This is where I am. I am doing what I’m capable of. Some days are going to look like this:

Not tired of this yet.

Not tired of this part.

I see where I’ve gone wrong. I’ve been judging the circumstances of my life which are beyond my control. I’ve been equating my broken body with who I am and my past as the teller of what my whole life will look like. Neither are true. But my circular thoughts would say otherwise, and sometimes we have to observe ourselves beyond our thoughts and feelings–as they are often flat-out wrong. At the same time, this life is just painful and hard sometimes, and I guess it’s OK to type that out loud. Just like I will type out loud when things change and life is better. Everything is temporary.

I also know that goals never hurt anybody. And I plan to make some more specific ones and at least feel  like I am playing a part in my health and happiness. There are small things that I can do and/or avoid that can help. Well, that’s what my mom says, and she is usually right. She’s also planning to give up TV for Lent which sounds great to me. I have a few projects in mind in lieu of the crap we would’ve been watching. Creativity never hurt either. In fact, it’s often where we find relief we didn’t even know we needed.

Also, listen to this song. It’s called I Wanna Get Better by Bleachers and I know the title is almost annoyingly appropriate but it’s a really fun and happy jam. And you can’t have enough of those.


Health and Happiness and Sickness and Sadness :)

Unwell, Unafraid

I know this feeling all too well.

A crash day followed by a crash day followed by a crash day. Somehow it’s worse when you’ve been feeling well.  All the years I’ve been sick, all the crash days and months, and I still can’t remember how bad it feels. It always pulls the rug out from under me–more so if I’ve had good health. Over and over, I forget. How incapacitating it is. How depressing it can get. When you’re moving and doing and performing tasks, you don’t think about these things. You don’t have to. You’re fitting in and alongside the rest of the functioning, productive world and that’s how you like it. It’s the best kind of fitting in. Someone asking you how you are is nothing more than a pleasantry and that’s how I like it. No reason to sugarcoat or think twice about the answer. I’ve yet to figure out a response that feels right, so mostly I lie, and I’m a bad liar. I cave easy. But this is one I get away with. I suppose it’s why anyone lies; it’s just easier. It feels good to give an answer that people want to hear. It keeps a hard reality in the blurry background, and that’s how I like that, too.

On day 4 of my crash, I’m laying on my moms couch in the office. My mom comes in and asks if I am still as weak as I’ve been. I quickly reply ‘no’ and that I’m feeling at least a small bit better. It’s a lie. I can tell because saying it out loud causes some kind of turning in my gut; where the truth would’ve provided solace maybe. I feel just as bad if not worse than yesterday. I’m short of breath for no reason and I’m weak down to my finger tips–peeling my banana earlier was way harder than it should have been. I’m dizzy every time I move. I get waves of nausea that are as close to puking without actually puking as it gets. But I lied. I said I was better. I’m left wondering why I did that. I’ve got some ideas.

Not having to think for very long, the answer came. It’s so easy: I’m afraid. I’m afraid that it could mean what it’s meant before. That it won’t go away. That I could be stuck this way the rest of my life. That I’ll never be able to fulfill all the dreams I have or achieve my notebook full of plans and ideas. I’ve had a one day crash turn into a week turn into 6 months. I’ve watched my life turn inside out and be emptied of the good parts. So often it feels like I’m watching it all happen from the outside. At 26 it felt as though the narrative of my life shifted from 1st person to 3rd, and that’s been hard to get used to. I said goodbye to things I wasn’t ready to. The illness took me over and then swallowed everything in my vicinity too. It was hard. It is hard. Some days, some weeks, some months better than others. It’s just been so “good” the last few months. It seems every time I crash I have to confront everything all over again. I think it will be that way until I fully accept and surrender to what my life might be. I already know the challenges I face, I also know it could be a lot worse. That in the end I have everything I really need. And while my life could be bad like I fear sometimes, it could also be good. great even. And the reason I need to let go of that fear is because what my life can be is up to me. Sick or healthy.

I have to remind myself often that a lot of this is out of my hands, which I have to be very careful with. That kind of acknowledgment requires perspective and reflection and it should never be an excuse. This is surrender, it is not giving up. They are two different animals and mixing them up can heavy the suffering. It doesn’t mean you call it quits and accept that life is shit. I’ve had to draw a lot lines between surrender and giving up and so often I’ve gotten it wrong. I’m ready to start getting it right. Apart from what we’re doing in our lives, the way in which we examine them makes all the difference in its joy or sadness. You’ll know whether you’re surrendering or giving up the same way you’ll know whether you’re telling the truth or not: one feels like relief, the other like defeat. One has roots in reality, the other in fear of it.

I have to stay aware. I have to remain conscious about the choices I am still free to make, and remember that I do still play a part in all this. Of course there are many parts of my life I would change were I able. But how I go about living the rest of my days is in fact up to me. Actually, it is only up to me. Will I choose to react? Will I choose to be a victim? Will I make excuses for myself to justify poor decisions? All of these are possible. And every day I wake up I can think of 100 reasons to choose a darker path. To stew in my own sorrow, to stop trying, to be defeated by something difficult, as if no one else alive is faced with their own challenges. Some that make mine look like a splinter in my pinky. The opportunity to go another route will always be there. You’ll get in trouble thinking that if you choose one good thing, you won’t be tempted by so many other bad ones. You will be. Everyone is, in their own way. Every person has demons to manage and a truth that isn’t easy to sit with in silence, but truthfully this is half of being alive. It’s why you’re a human being and not a turtle in the mud or an insect reacting to stimuli; flying toward whatever is bright.

The funny thing is, what most humans want is control. We like to think we make our own lives and everything is up to us. I disagree with that notion on a few levels and agree with it on others. I know for certain we play a huge hand in our own happiness. But when we get dealt things we didn’t plan for or wouldn’t have picked we feel like we’ve been royally screwed. Robbed. So often I fail to realize it’s not about choosing my hand but how I play the one I got. That has been and always will be up to us.We get to choose how we talk to people and who we surround ourselves with and what we’re going to give our precious energy to each day. What mark will we leave? What will we contribute to the world we’ve been given? Scientists and theologians continue to debate whether we chose to come here or not. Regardless of whether we’re the product of an all-knowing creator or consciousness or the random assimilation of atoms and space, we know for certain our time here is temporary. Loving or hating our life won’t change whether it ends or not. It will end. We don’t get to stay forever. We don’t get a say so in some of the things that were done to us. Every adult has a childhood. Every child had parts that weren’t fair or right. At one time or another, we’ll question every truth we’ve held onto and every drop of optimism we’ve carried. At times we’ll have to fight for our purpose, even if it’s just to get out of bed and make yourself eggs. (That was mine today. Yeah!) We get to choose what we do next with what we have. Will I find a reason to be happy or a reason to be mad? Because I will find both. I can always find both.

I have plenty of reasons to be both. But the last thing I need is to be afraid of what is real. Even if what is real is scary. Life is scary stuff dude. Have you been outside lately?! Even in small doses. Sometimes I have to chop it up smaller and smaller and smaller until it’s digestible enough for me to get out of bed and face the world and find my path and keep going. Doesn’t matter that I know where, so long as it’s forward. The truth moves us forward where lies keep us in the past. Surrender smooths the road for us to navigate with eyes anew, where giving up halts us, traps us in static pause.

I have no idea why even small truths are important, maybe for the reason that even small lies can cause damage. My small truth is that today is the 5th day in a row I feel terrible, and I live in fear that I won’t emerge from it. That the illness has the steering wheel and I’m passenger side. I fear what all the pills I take is doing to my insides. I fear I’ll live with my parents forever. (Sometimes I think they fear it too :) And all of these things are O.K. There’s no need for me to sugarcoat it, lie about it, or fall dramatically somber in acknowledging it. In fact admitting the fear almost instantaneously makes it smaller. Takes away a little of its power.  Today I’m unwell, but I’m also unafraid. I expect to get better. Being quiet and afraid won’t rid me of what I fear. So perhaps better to be loud and honest. Life will go on regardless. What I want to be assured of, and what I imagine so many of us want to be assured of, is that we tried. That we didn’t take being alive lightly. I know I don’t live all of my days like that, and that’s a change I’m working on. Imagine if we could all live in our truth, whatever it is, and embrace each day as though we’d never lost. What might our world look like then? Our lives? Our Facebook Statuses?!

This has all stemmed from one small lie I told one afternoon that followed me around all night and morning. Funny that me confronting a grand truth began with a dumb little lie. But something about it makes me feel in my bones that these things matter. Sometimes I see and feel in myself and others that we’re starving for things that matter but are constantly being fed things that don’t. I don’t know how to begin a shift, but I know to make changes on a big scale, we must first begin with ourselves and live honestly. It’s our job to dig deep within, listen to our intuition, and be human for one another, not at one another.

I’m still tying all of my thoughts together. Still looking for answers and often coming up short. Sometimes I can feel the strings of my reality ever so slowly weaving together and making something whole from many mismatched parts. That’s what so many days feel like. Raking through the muck and finding the good parts. Then making sense out of the bad stuff left behind. The fear and pain and anger, there’s a lot of answers in them.

I’m sharing this beginning with anyone reading. (All six of you)  Maybe somehow, it’s something we all work towards together. And whether this is just a stepping stone or a small premise for something bigger, it doesn’t matter. This can be the start of something new, even if it’s very very small. And I can look back at this oddly cold day in January, where besides the frozen leaves outside, it would have been business as usual. But it wasn’t. It isn’t. Where a small lie would have left me afraid, a tiny truth burrowed out instead. And in my repetitive life, maybe this is the start of something new.

Health, Happiness, and I Ain’t Scurred

I ain't scurred

Just Kidding I’m Still Scared

Even When It’s Bad It’s Good

The Holidays rock. They just do. I feel worlds away when I talk to someone who doesn’t like Christmas. Or Christmas music. Or trees. Or gift-giving. Or ELF. (On repeat!)

Is it excessive? Sometimes. I can admit that. And has Christmas in our country become overly commercialized and sensationalized with the meaning lost in mall crowds, and could we have a long discussion about that over the dinner table? Yeah, we could. But I don’t like going there. I’ve never engaged in the War On Christmas propaganda that inevitably resurfaces each year. And it’s not in the name of denial, but because every year, for a small fleeting time, regardless of my health or where I am personally, the Holidays are a small but hopeful light at the end of a year–where I see more good in the world than bad. Often it’s a reason to become softer, reflective, and thankful. Or do something kind you wouldn’t normally do. If for no other reason than “Well, since it’s Christmas.” I love hearing those words. And I love the simple reasoning behind them.

For my immediate family, Christmas is always the time we give to ourselves to be a family. There are four kids in four states. There are grand-children and extended family and friends who might as well be. But I like that it’s been our staple. Usually it’s not a question of who will be attending Gelpi Christmas but where we’ll be making the noise. And we do, make a hell of a lot of noise. When it’s not me making it, I sometimes plug my ears. :) Life is busy. The work for all of us is different but tiring in its own way. It’s easy to get distracted and let time go by without realizing how many months have passed since we’ve had any genuine interaction. It’s easy for face time to turn into FaceTime and phone calls into text messages and those to turn into Facebook and Facebook to turn into emojis. I mean really, instead of writing this blog post I basically could have just put…photo-7

But emojis can’t replace real emotion in writing, just like emails aren’t as personal as phone calls and text messages will never compare to feeling the weight of a hug from someone you love. Admittedly, as the technology advances, it does help increase the amount of contact time between all of us.  And thank God for it, because as secluded as my life sometimes gets, sometimes my iphone feels like my only window into the outside world. Technically I met my youngest niece Harlow over FaceTime and spent some virtual “feedings” with her. And I’m extremely impressed and grateful by what can be accomplished over a 2 x3 screen on my phone. It truly is, extraordinary. But still, holding her for the first time beat out those “virtual hangouts” by a long shot. Nothing like the smell of an infant, or getting her to smile.  Or watching my niece Olive dance in circles to music or watching my parents enjoy grandchildren or playing cards with my grandma or my siblings annoy the hell out of each other. In a good way, of course! This year my 87-year-old grandma surprised us and came to California for A Very Gelpi Christmas. Show an old woman the capabilities of the iphone and try not to marvel at how far we’ve come and what we’re capable of. It’s a new world, and it’s changing all the time.

Every year at Christmas I always reflect on the previous Christmas. Where was I at this time last year? What has changed? Are things better or worse? And where can I do better? That’s the novelty of an upcoming new year. As they say, It’s never too late to live the life you want to live, and I am always striving to live better. To be a better me. Last year at this time, I was struggling immensely in my health. I had improved from the bed-ridden state but was still feeling awful day-to-day. It was a struggle not to be permanently supine. I found socializing exhausting and far from any fun. It was not one of my better Christmases, but I still enjoyed the tradition of it all, like always. Right after Christmas I relapsed again. I was stuck in Colorado, in and out of bed and freezing my ass off in their record Winter. I remember thinking in my darkest hours and sleepless nights, when the weight and relentlessness of my situation felt too heavy to bare, that this, like all things, would end. One way or another. It was a matter of physics. Time is one of the constants of the world, and it would keep going and eventually things would change. Winter would turn to Spring and at some point I’d lift my head with ease. I wouldn’t be bedridden in Colorado for the rest of my life, even if it felt like it. I remember reciting Winston Churchill’s quote: “If you’re going through hell, keep going.” That’s what I did, and at last, the physics of the world did what it always does. Winter passed. I was given the opportunity to live in a happy house with a lot of windows; just Monty and me. And my health very slowly improved from what it was. And I have truly never felt luckier or more grateful to be where I am. Things aren’t perfect. I’ve still a ways to go. And it’s never far away in my mind that this illness can hibernate and reemerge as if on its own agenda. Sometimes for no reason I can think of. But for now, I’m so improved from this time last year. And it feels good to know, that the reassurance I felt at night but could not see was real. The hardship wasn’t forever–the sun came out and I survived. It’s easy to be disillusioned and overwhelmed by our thoughts in hard times. But how important it’s been for me to remember, to everything, there is a season.

And for me, the best will always be this time of year.

Happy Holidays Yall. Hope it was a good one.

Health and Happiness and photo-7

How To Escape a Nightmare?

It is 2:31 in the morning on Thursday, December 12th. I am wide awake, besides being restless in the legs, antsy in my mind, and strangely very hungry. I basically just ate dinner in bed. Monty temporarily lifts his head up from sleep at the foot of my bed and sniffs the air to identify what I’m eating should he decide he wants some. He does not. He plops down his head with an exhausted exhale and his belly falls. It doesn’t take him long to re-enter dream world. Me, I am stuck on this side. Reality in the middle of the night. The same as last night and two nights before that. The last few hours have looked a little like this:

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But lately my problem is not as much my difficulty in sleeping as much as what happens once I finally do fall asleep. I think it might be starting to be a problem. Here’s an except from my notebook from a few weeks ago.

Recently, I took a trip to spend Thanksgiving with my Brother and Company in Miami. I slept in baby Olives room, my one-year old niece. The second night I was there, I had a horrible nightmare. Something I’ve been having more and more of these days. This one wasn’t so much plot based as it was more a series of disturbing images, like those old home movies that play a little choppy from slides. From the start the dream was filled with eerie-ness and unease. I was in a dark place (literally)- similar to a cave but not entirely enclosed. There is nothing pleasant about my surroundings. The aesthetic is dull and drab. I’m walking forward but don’t know where I’m going. I see a full skeleton positioned against a wall, sitting as though it were an alive body, reading or relaxing. As I’m staring at it, suddenly the skull whips its head to turn and look straight at me, and its mouth jolts open. Quickly, harshly, intensely. In a word, it was terrifying. Almost at this same moment,  I realize I am dreaming. I find myself trapped in this nightmare, which has happened before and is now happening frequently. I try to scream in order to wake up my brother or sister-in-law, knowing that if I scream they’ll come to the room and subsequently I’ll wake up, escaping the dream. But when I try to yell, nothing comes out. Not only that, my mouth feels glued shut, as though my upper and lower lip were molded together. Consequently I am voiceless. My next attempt to escape is to physically kick and flail my limbs with such gust that the movements shake me out of it- my equivalent of pinching myself awake. But when I try to kick my legs, they’re stuck. They don’t move. They feel as though I’m standing waist deep in thick, dense mud. When I try to move my arms it feels like I’m in a straight jacket. So there I am; trapped in a scene which appears terrifying to me, and unable to speak or move. The strangest part of it all is knowing that it’s not real. Once I have this realization, the fear should fall away shouldn’t it? At any rate, it’s just a stupid skull head with its mouth open. It’s not the first thing I’d like to see in the morning but still, it could be worse. I try and try to scream and move and kick and flail but I can feel all my attempts failing. Silence, stillness, stuck. It’s stressful. The fear is tiresome. Finally, something from the other side makes a peep into my dream. I hear it once. I hear it again. It’s reality calling. Gradually it grows louder and louder, and I dissolve slowly from the dream. It turns to ash as I slowly wake to the bedroom. The reality calling is baby Olive crying. Finally, my eyes open. I can move my legs. I have a voice. I relish the sound of the baby crying. Never have I been so relieved and so happy to hear that sound. I feel bad because it was probably me squirming and making noise that woke her up–trying to escape the cave with the evil skull! But this is how it goes now. I realize I’m dreaming, often it’s a nightmare, and I can’t get out of it without something from the other side, some external force intervening. My mom saying my name, Monty pawing at me or the bedside, my phone ringing enough times to finally rattle me out of it. But never on my own can I get out. My sister-in-law sneaks through the cracked door stepping lightly, hands Olive a bottle and immediately her crying stops. She lays back down in her crib and soon I can tell by her breathing that she is back to sleep. Me, my heart is still beating fast, and I’m thanking God that Olive cried and got me out of the dream.                                    

                                                                                                                                          11-27-13

So there it is. I went a whole week without a computer! Sometimes you just need to feel a pen glide on paper. Anyway, that’s what happening lately. It’s making my nights quite..adventurous.  I remember learning in a Psych class once that in our dream phase of sleep, the brain temporarily “paralyzes” the body, so that we don’t jump out of windows or act out the weird things we do in our dreams. So there seems to be a miscommunication somewhere, a mis-firing of neurons between my brain and my body. One says I’m awake, the other says I’m asleep, and I’m caught voiceless in the mud, somewhere in the middle.

As dependent and exaggerated as it may sound, Monty has been my life saver lately. Or dream saver I should say. In my last few nightmares, I’ve called out to him (or attempted to) knowing if he made noise in the room I could get out of the dream. Two nights ago was another very scary one where I couldn’t move or scream, but I remember trying so hard to yell Monty’s name. All I could get out was “Mmmmmmm” because once again, my mouth was glued shut. Even without fully saying his name, he came in my room and pawed at my bed, until I woke up and my voice came back. I hugged him really really tight then, and he slept the rest of the night in my room. (Not on the couch, which he apparently finds preferable) Because the dreams are so real, the fear is so tangible and the images so lucid, even after waking up I feel in an eerie haze. Floating in some in-between world. I often need to look at something mindless to get my head out of whatever nightmare I was just trapped in. (Helloooo Facebook at 3 am) There are plenty of distractions to lift the post-nightmare haze, but in the meantime, I’ve got to figure this out. There must be a way for me to get myself out of these dreams once I’m made aware of where I am. And while I admit there are unpleasant and scary moments in all this, it is very interesting. I’ve always been a heavy dreamer, waking every morning  often with detailed streams of dreams playing through my mind. Sometimes I write them down, other times I tell myself I’ll remember and I put it off. But the more I immerse into real life, the faster the dream fades. “Like cotton candy” my mom always says. “Write them down right away!” My mom happens to be a student of Jungian psychology and well versed in the symbols and library of dreams, so since living with her again, she’s been a live in dream-interpreter for me, which is nice. Think about it– there is no clearer or more accessible portal into your subconscious than dreaming. It is hours of our existence that is not interrupted by thought, so I know there are profound answers to be found there. I am her I.T. person and she is my dream analyst. Fair trade.

I’ve learned quite a lot in breaking down the symbols in our dreams. And there is universal meaning to be found there. Do you think it’s a coincidence that many people dream their teeth are falling out? Or that they show up to an event completely naked? Or arrive to take a final for a class they haven’t gone to all semester? Of course each one relates more individually to each person and their life, but this is the human experience. We aren’t so different. I think it’s fair to say there is some objectivity in examining the subconscious without subscribing to some hokey pokey psycho crap. Admitting there is meaning in our dreams isn’t subscribing to witchcraft, as I’ve heard people react when hearing of dream interpretation. We shouldn’t be afraid to go deep for answers. That’s where most of them lie.

I’m going to attempt sleep once again. Monty is here and has been made aware of his duties. “When I start freaking out, you paw at the bed. Got it?” On the next post I’ll have my mom break down some universal dream symbols and go further into these nightmares if they’re still occurring. If anything, it’s another adventure. The riddle now is how to get out.

Accepting any/all suggestions!

Health, Happiness, Dreamworld

The Allure of Alone

I’ll admit, I’ve spent a certain amount of time, perhaps too much, fantasizing about the life I’ll have once I settle down with someone. How nice it will be to call a man my husband. To introduce my “better half” at parties, to have a “plus 1″ at weddings and someone to sit around and do nothing with. I’ve even set aside a certain amount of happiness as something that will come once I am married, once I’m with my “soul mate.” Whenever I feel very alone or uneasy, I convince myself that those feelings won’t come once I’m with my Mr. Right. I think now though, having a very large amount of alone time- some of it lonely, but more of it not– I realize that the certain loneliness/angst/unease is something I have felt even when in loving relationships. It’s finally occurring to me that just because you’re in love or committed to life with someone, doesn’t mean all the intimate problems of being human go away. I admit there is at least a small amount of fantasy in my thoughts about what my life will be like once I’m given away and married. Instead now, I am learning to really treasure my solitude. Just like anything else, it won’t last.

I was speaking with a friend recently and we were calculating how much of our lives are spent with another person. Which is wonderful for the most part. Science tells us that those married and with families usually live longer and are often happier than those who are alone. But at the end of our lives, it’s often a very window that we actually have just to ourselves. For most people, the first 18 years are under the rule of parents or parental figures. College years are usually spent living with roommates. In the past most young adults were married or on their way to married by the time college was over. More and more however, it’s becoming common to have a new amount of time in our mid to late twenties where it’s just us. We’ve entered the professional world, but not taken on the role of husband or wife yet. Maybe enough of us saw how detrimental marrying too young could be. Or we witnessed the pain and exhaustion of divorce. We’ve seen or were the products of marriages that didn’t look happy and fun– instead they looked like a lot of work and not much else. Increasingly, I see young adults holding off on rushing down the aisle, which I think is a good sign. Till death do you part is a pretty big line regardless of your faith, age, or morals. Probably now more than ever is a young demographic of people living on their own. It certainly can be lonely at times, but I’ve begun to cherish this time where it’s “me” and not “we.”

It seemed my grand-parents and parents generation married relatively young. (My mom was married with two of her four kids by my age, and my grandmother had 4 of her 6 by now) I couldn’t help comparing my age and progress to theirs for most of my mid to late 20′s– but I’m making a conscious effort to stop doing that. And I’m also beginning to see the value in a young adult life that is spent without a husband or partner. I also realize that finding and being with your “soul mate” or partner doesn’t mean an end to loneliness or angst all together. In fact, in many of my loneliest moments, I’ve actually been in a relationship, but felt completely unseen or misunderstood. One might say that being in a relationship that you want out of is one of the worst versions of angst there is. This is why it’s silly to put all my ‘happiness eggs’ in one marriage basket. A ring and a contract doesn’t equal an end-all to personal struggle, challenges or pain.

I have to remind myself there is no timeline. Some women and men find lasting love at 18. Some at 38. All it takes is a few minutes on Facebook to see that many girls my age have married already and started families of their own. I used to look on with some amount of jealousy– some feeling to rush this chapter of my life so I could start the married one. But I also know you can’t really force falling in love. Or meeting your dream person. I have been in love a few times and met really wonderful people. But I’m not married yet because it hasn’t been right yet. Some say it’s a matter of timing. Some say it’s fate. Some say you’ll meet Mr. or Mrs. Right as soon as you stop looking. (I can testify that it is often when I’m happy and fulfilled on my own that I end up meeting someone who adds significance to my life that I didn’t know I wanted or needed.) At any rate, the goal should always be to find happiness, wholeness, and fulfillment on your own. Putting off your total happiness until someone you’ve deemed the answer to your prayers, i.e. someone you haven’t even met yet, is not only reckless but dangerous. Someone else won’t be able to fill you up if you haven’t learned to do so on your own. I think the healthiest and most romantic of love comes from two people who don’t desperately need each other, but just genuinely love and like each other so much they just want the other around–forever. I know too that knowing yourself well is a huge prerequisite in finding someone to love well. We can’t expect other people to fill up holes within us. When you get down to business, that is up to us.

Looking back at relationships in my life, and also looking at recent time spent alone, I see that sometimes I lose myself in love. I don’t write as much. I don’t seek creative outlets as much. I fall into comfortable habits instead of seeking newness. To specify, there’s nothing wrong with that. I can’t wait until my Saturday nights are spent with my husband in bed, asleep by 11:00 pm. But I also have begun to see the advantage in being alone. I’m more productive in the arts, which is an important realm of my life. For instance, I’ve spent the last few days drawing and making water colors. (Also listening to jazz–my brother Nick’s suggestion) I know that were I in a relationship right now, I wouldn’t have done these. Not that they’re great pieces of art, not that I can’t do them when I’m with someone, but for whatever reason I usually don’t. And I like just allowing my soul to let out whatever it needs to without the interruption or expectations that come when in a relationship.

"headache"

“headache”

"politics"

“politics”

"birds"

“birds”

"dick cheney"

“dick cheney”

Besides setting apart time for art, I spend more time with my parents. I read more. I don’t have to compromise on TV shows I want to watch. (Watching Say Yes to the Dress as speak) I see my brothers and sisters and nieces more often. There’s no argument about where I’m spending Christmas. For the most part, I spend time how I want with who I want and there is a freedom and casual thrill in that. Ultimately, I think human beings are meant to find our counterparts, and still I look forward to meeting my person. Life feels incredible when you find someone who shares your intimate perspective. No one can argue with the pure and ridiculous happiness and high that comes with falling in love. But on the other hand, it’s important to examine the time you have with yourself and you alone. I think of the time I spend daydreaming about marriage and babies and family life. Maybe I’ll always do that. But the other day I had this image: me, married, a house noisy with children, reminiscing about that time I lived in my parents pool house, the days mine to spend how I wanted with my dog Monty. Staying up late, sleeping in, writing, reading, drawing, and creating. I remind myself to be grateful for this time in my young adult life; alone but not really lonely, preparing for what’s next, whatever that might be, whoever it might be with. Time to treasure what I have now– a whole lot of me and Monty time. :)

Health, Happiness, Solitude